pdd-nos

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Hello,

My name is Nicole, my 5yro is pdd-nos. This discovery was 2 weeks ago, when he told a teacher he wanted to kill himeself while banging his head into a wall. We were blessed to get a Dr. appoinmet that same night.

I feel relived in a certain way becuse since 2yro problems were there but no one I told listened. All I keep hearing is its due to my parenting, my parinoid thinking, and was told from other's in family relationships on fathers side I was making this up.

Now someone finally listened!!! I am now reserching, reading etc pdd-nos kids which helps me educate myself book wise but reaally Im finding myself so lost cuz nobody I know has a child with this or even honestly heard of it.

Im on a emotional rollercoster that seems to never stop....

 
By marcie on Sat, 02-11-12, 18:16

You and your son are in my prayers. Wishing you health and happiness. God bless you.

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By ctsheart2 on Tue, 02-28-12, 13:48

Niclole2012, I am so sorry to hear what you are going through. I undertstand the frustration and anger actually, that can come from family, doctors, and the schools not listening to you. You son is so blessed to have a persistent, strong mom like you that won't give up. I am not sure if Child Find is available where you live, but that's how we got started. Even though they worked with the school district, I called them directly and didn't have to wait for the school to decide to test my son. You are right, it is against your legal rights if the school refuses to test. I'm sure you may have already tried this, but have you contacted your county? I found that my county offered advice and had lists of resources available. If I still didn't find what I wanted, they made phone calls for me. I hope yours offers the same. Also, your son may qualify for some assistance through your county.

Aside from all the practical advice, I can only imagine your pain and how tired you are. I know that I feel that way when all this started for my family. We are almost two years into it and things are finding their way I guess.

I do feel for you that your family wasn't supporting you. I hope they are now. We still have family members that think that my son's autism is made up. That I also am being paranoid and overprotective. I actually just had a meeting with my son's school yesterday and the room full of staff just looked at me like I was a crazed parent. They humored me but did't really take me seriously. It's really hard to accept. I share your frustration. Keep being persistent. Scream, yell and cry when you need to. I have made headway with our insurance company and finally found good therapy by doing so.

I pray that God keeps you and yours in the palm of His hand always, and blesses you all with the strength and endurance, and financial support you need in this journey.

http://www.squidoo.com/stepping-into-autism

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