She's awake 2 minutes and has already screamed at me twice

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I was going to wake her at 1100. She has chores she needs to do. But I decided to let her sleep for awhile. What's worse? Undone chores, or having her scream at me unrelentlessly? I guess I know the answer to that one... Time I begin to do the chores; no matter how painful (I have chronic, severe unlrelentless painfrmoa back injury.
So I let her sleep. And of course, she has no desire to wake up. I told her she couldn't play her DS or on her phone until her rooms have been clean (and other chores)... When I woke her up, the first thing she did was scream at her brother (he's six, she's 21)... she has Asperger's for those of you who do not know... it's already ugly. Onto the day from hell... it gets worse everyday. Eviction countdown.... 17 days left. I don't know if that makes me relax more or scared more. I really do not want to send her into a world she isn't ready for. But I cannot be abused on a daily basis either... well maybe I can be verbally accosted, but my six year old is starting to show signs of the constant verbal abuse and the non-stop screaming. Sigh..... I wish I had the answers. But then, I don't even know the questions.

 
By Suzee on Sat, 02-04-12, 12:00

I'm so sorry Bluberry! That is so terribly hard. Sorry about your pain in your back as I know so many people that say back pain is the worst!!! Just wanted you to know I'm thinking about you and sending prayers for a better day.

Big gentle hugs, Suzee

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By bluberry on Sat, 02-04-12, 18:03

Suzee,
Thank you so much. I really appreciate your kind words. Truthfully, kind words are so sadly limited in my life. When I do hear them, I never believe them. I think that's why I reached out to a site like this. The random kindness from strangers... Hugs back at you. I also appreciated that you were so thoughtful as to make my hugs gentle. I try and fight the pain; as I am fairly young, it can be very depressing to have my daily everyday activities limited so much, and to be so very dependent on others. I was the one who always helped. I always gave what I could. Now I have nothing to offer. Thank you so much for reaching out to me....

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By Finding Myself on Sat, 02-04-12, 12:05

My stepdaughter is like that with her mom, too. What her dad and I have discovered is that if we let her sleep too long, her mood is much, much worse. She really does do better on a regular schedule. She's awake by 9:00 and is allowed a little bit of time to fully wake up, but then she has to get up and get breakfast. She's 19, and out of high school, and tried college for 1 semester. She' not ready - emotionally - to handle a lot of adult things. She's going to try a vocational school next fall. She's also on a couple of meds: Welbutrin & Abilify - the Abilify for only a few months, but the Welbutrin for several years. We recently did increase that dosage; it seems to be helping.
I wish you peace & serenity; you have a tough road to travel.

Finding Myself

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By bluberry on Sat, 02-04-12, 19:10

@Finding Myself;
Thank you so much for your post. My daughter is unpredictable, though she does fare well so much better when her schedule is structured. However, she graduated school in June (when you have disabiities, you can go to school until you are 21. But, she is not ready for college even though she wants to go. Another issue is her profound poor hygiene and she has hoarding issues and rarely changes her clothes. Emotionally, she is in the age 9-12 range. So, when she sleeps, I would often wake her around 12 ish, as I think it is time to get up by then, but lately, she has been so miserable and nasty, that it is easier to let her sleep. However, I also need some help around the house, and being she doesn't do much, I feel she also needs to do some chores. So it is a balance between waking her up early enough to do chores; and late enough to minimize the screaming and nastiness. She is allergic to abilify and refuses to take Wellbutrin. She is supposed to be taking Adderall, Prozac, and Topamax, but refuses to take those currently as well. She refuses to go to therapy. Sigh, I will take all the peace and serenity wishes I can take. My road has been washed out and filled with dangerous curves, yet I can't seem to get off of it. Thanks for your support and kind words. These are so much appreciated. I wish you the best of luck with your step-daughter as well. At least she does get out of the house and will be trying to do something with the vocational school. I know my daughter wants to go to college, and she is smart enough, but I worry she won't be able to overcome her social dysfunction or other issues to manage. I hope I am wrong. Thanks again for your support. Good luck.

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By TennisPlayer on Sat, 02-04-12, 18:07

where is she going?

I think she needs to be monitored like a residential care type situation so she can be integrated into a workplace eventually and have more harmony in her life and your's too.

"Each day make choices that your future self will be happy you did!"
"Choose long-term freedom over immediate comfort" Mindfulness Through Anxiety is a great book! www.MeditationOasis.com. If you would like me to pray for you,just pm me.

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By bluberry on Sat, 02-04-12, 19:27

Thanks so much for your comments. I SO WHOLEHEARTEDLY agree with you. My heart weeps as I tell you there isn't anywhere for her to go. She absolutely needs a residential care facility. There aren't any; at least not in my state, and not for Asperger's. I'm told that if she had schizophrenia, or if she had down syndrome... or other diagnoses... but not for Asperger's. Asperger's children/adults simply have not been around that long. Asperger's really became so much more relevant in the 1990s/very late 80s. Therefore, they are just getting to the point, where now, more and more have graduated high-school, and/or college, so "NOW WHAT?". Society is simply unprepared. I have tried. I could spend hours telling you how we spent the last 10 years, where she has been in and out of the hospital, short and long term programs, and the minute she began to show improvement...send her home! The best place she was at was also the worst. It was a progressive place where she eventually ended up in a house with about 8 other kids, and she was doing so well... but she met the goals set, and she came home. She had been gone almost a year. Within three weeks of her being home, I BEGGED for them to take her back. That was 5 years ago, and there has been no relief since. We had found a place to put her last year. We were just about to sign the papers. But; it was a long term care facility. She would be the youngest there, and the next youngest was about 55. It was for the elderly who went there... TO die... I couldn't do it. She was supposed to start her life; start college or a job, or something... I couldn't send her to a facility that would offer her nothing... yes they would make sure she was safe, get her meds, and offer things like Bingo and crafts with other elderly men and women. But I couldn't do it.
Here's something else drastic I did. I offered to divorce my husband, and let him take our six year old away. Not that I don't love them... It was because I do... but I was afraid that she was doing too much damage to our marriage, and worse yet, to our little son. He is showing signs of the emotional abuse. He still wets his bed at night (wears pull ups), and he is very tempermental like never before. I know he needs therapy too. I cannot tell you how stressful nearly every single moment is. I simply no longer know how to handle it. That's why we evicted her.... but the case worker has not stated at all any idea where she thinks she might be going. And we are about 17 days away... Please pray for us. Thank you. I wish you the best too, and I appreciate your kind words. I wish there was a residential treatment facility. I would sell my soul to send her there. I would live in a shelter to get her the help she needs.

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By TennisPlayer on Sat, 02-04-12, 20:24

There's got to be somewhere even out of state to help her out. She needs professional help. Keep on calling places and if they say "no" then ask well where would you recommend I call next?

"Each day make choices that your future self will be happy you did!"
"Choose long-term freedom over immediate comfort" Mindfulness Through Anxiety is a great book! www.MeditationOasis.com. If you would like me to pray for you,just pm me.

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By bluberry on Sat, 02-04-12, 20:51

@TennisPlayer,
Thanks so much for your encouragement. I truly do appreciate it. I agree that one would think there is help somewhere out there. I have looked at some places online. I have heard that Delaware is very good in providing help as well as Florida. My grandmother had a friend who lived in a residential facility a few years back. Unforutnately, my grandmother died, and so did her friend, so there is no way for us to know for sure. We tried contacting the company who we "thought it was" to know avail. I have left my full-time job to attend to this situation, and can barely manage an online part time job. I am physically disabled as well, but my level of concentration is shot. I appreciate your suggestions, and believe me, I won't give up. I can't give up on my child. There has to be something out there. But at the same time, I can't have her here all the time acting out on us either.. Thanks again. Your kind and compassionate words mean so much...

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By Finding Myself on Sun, 02-05-12, 08:52

Blueberry, have you thought about writing a letter to your daughter? Maybe it will be easier for you to say everything you need to say, but without having to have an argument about it. Save a copy on your computer; you may need to print it more than once. Leave it in an envelope, addressed to her, and then say nothing about it. Maybe if she can read how you feel, it may be easier for her than hearing the words. And, she won't be able to argue with you. If she starts yelling after she's read it, turn around and walk away. Leave the house if you need to; go for a drive, a walk, anything. If your daughter is a threat to anyone - herself or others - that may help find a place for her. If not, then the tough love of evicting her might be the only way for her to understand that her behavior must change if she's to remain. (You might want to think about changing the locks, too.)
Have you thought about counseling for your son? He may be fearful that he's not loved as much as his sister, since she gets a lot of the attention. Setting aside some special time for him might help to let him know how much you do love him, and that he isn't forgotten.
I do hope that you can get through the next few weeks with relative ease. You will be in my thoughts. Sending soothing hugs to you!

Finding Myself

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By bluberry on Sun, 02-05-12, 13:22

Finding Myself,
Great idea! I like the idea of writing her a letter. Obviously, I can write a lot about the things that I have on my mind. She is very intellectual and would understand it, but I know she would overinterpret it, and put too much into it. What I mean is that with the autism, everything is exaggerated, and everything is black and white. I wish I could give you an example, but I can't think of one right at this moment. She misreads most of what I say, but not because she doesn't understand it, but because it is if she is looking to find something at fault with me. She loves when I make mistakes. She points it out to everyone for months to come. I love the letter idea, I do, I'm just worried that it might make things worse as much as they do better.
We have changed the locks. We have changed doors. That's what happened to our bedroom door and to the bathroom door. We switched the doors and put locks on them. She kicked them in.
I have thought about counseling for my son. I guess I know he needs it. It breaks my heart to think that our lives have come to ruining or damaging his. Not only have I offered to divorce my husband in an attempt to save them both from damage, but I even asked my mother in law to take my son away from me (that was about 2 or 3 years ago when we still talked). I know that I will never forgive myself for his damaged mind. Never. Everynight (or almost), I apologize to him for the yelling and screaming under the roof. I promise him better times. The weird thing is that my husband and I almost never argue. We have been together almost 13 years, and married almost 10. We rarely argue. I can count on one hand how many arguments we have had. And they never lasted. We choose not to argue because I grew up in an abusive household, and I cannot be around that. I tell my daughter that a lot. I would NEVER have let anyone treat her the way she treats her brother. I would have had them jailed; pressed charges, and at the very least, booted them out of my life. But she's my daughter... and she's hurting my son psychologically. And she won't stop.
He knows his sister loves him. He absolutely WORSHIPS her. But she gets so controlling, so nasty, and so demonic. I pray too for the next two plus weeks. I keep telling myself... just a few more... just a few more. The weekends... they are the absolute worse... both kids home all day. Her screaming ALL day (although, so far, this weekend hasn;t been TOO BAD.. I know I will regret that). And my husband works all day all weekends. Sigh. Thanks for your kindness. I know you will find yourself. i just hope I don't lose myself to the point that I have forgotten who I was, and I think it has already happened....

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